Connect
← Return to Lamictal, side effects?
Discussion
Comment receiving replies
Yes, big issue with autism is sleep problems.. rhen sleep deprivation can lead to seizures.. she has been on 10 mg Melatonin, last year a dr put her on Trazadone which caused things to get worse.. had to get her off ..
Course being 48 now perimenopause , soon menopause.. she is on Prednisone ..
Her care home provider is against the marijuana rx as is the neuro..
Her autism/ neuro dr recently discharged her as he wasn't happy we took her off Dilantin( many problems with blood levels, seizures after 10 years on it) said it caused the status epilepticus so now isn't even addressing her autism..
So now i just have her epileptologist who ordered zonisanide, ( caused severe constipation, impaction) now lamictal.. but she won't handle the behavior meds.. really quite a mess and so i can only hooe lamictal will work!
Thank you for all your support..
Replies to "Yes, big issue with autism is sleep problems.. rhen sleep deprivation can lead to seizures.. she..."
Connect
Minajo,
I agree with @jakedduck1, Lamictal does not seem to be working well for her, unfortunately.
There are still many doctors who are against medical cannabis because they have not studied the endocannabinoid system. Epidiolex (pure CBD) is a medication that was approved by the FDA.
It seems that the medications your daughter has been and is on are bringing her more harm than benefits, just like it happened to me. If I would be in your situation, I would check for a second opinion. This friend whose son is autistic and also has epilepsy went to Mayo Clinic for a second opinion, having Epidiolex been prescribed to her son. It changed her life as well as her son's life. I have sent you her e-mail in a private message in case you are willing to exchange experiences with her.
Chris (@santosha)