← Return to Endometrial Clear Cell Cancer: Looking for survivor stories and info

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@naturegirl5

@teechur89 Welcome to Mayo Clinic Connect and to the Gynecological Cancers Support Group. I'm going to borrow a greeting I've read in other groups which is basically we are a club and a group that none of us wanted to belong to. We are here to support one another and in return by sharing our stories we support someone else.

You have really through a very difficult time over the past 11 months. I had a hysterectomy for endometrial adenocarcinoma in 2019 and with a recurrence in 2021 I had 25 sessions of external radiation followed by 2 sessions of brachytherapy. I was fortunate in that I did not have a painful or negative experience with brachytherapy and I honestly don't know what is different about brachytherapy from one institution to the next. Like you I struggle to stay grateful to be cancer free knowing that at each surveillance appointment something suspicious could be found again. My next appointment is in November as I'm now checked every six months so I can at least spend those first few months putting cancer in my rear view mirror. The closer I get to each appointment the more nervous I get. I've since learned from others and through education classes that this worry is common with cancer survivors. I suppose the best we can do is to move forward in our lives, not put off anything that we want to do like travel or take on new community or volunteer opportunities and hold our relationships close. That's what I try to do in the face of reality.

What do you do or how do you remind yourself to live your life after such a trying year?

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Replies to "@teechur89 Welcome to Mayo Clinic Connect and to the Gynecological Cancers Support Group. I'm going to..."

I try to keep doing what I normally would be doing. I was so determined to stay the course. In May after my 5th chemo I still showed up to volunteer as I have been doing for the last 26 years. My watch clocked me at ten hours to walk a mile. I probably shouldn’t have been there but I so look forward to volunteering. I remember to look back at how exhausted I was then and remind myself I am getting more stamina back , just not as quickly as I would like. I lost my husband three years ago to colon cancer. Despite a good reading on his colonoscopy six months before and numerous scans the doctors did not diagnose his cancer until it was stage 4 and he died less than three months later. I took a medical leave from my job to care for him at home. I was clueless that he could pass so soon. I retired from a job that I loved to deal with my cancer treatments. My sister and I still have two more camping trips planned yet ( we already did three weeks of camping this summer ). I adjust and do less hiking than I would like to normally have done, I appreciate hearing your positive words and sharing a part of your story with me.