marmymoomy,
Glad you got a referral from a trusted person. I wholeheartedly agree with matt2024 about advocating for yourself...it's often harder to do than we think.
Following matt2024, I will add my 1 cent of advice..
I am 65, female (seems to be an issue ), intro to Endo 17 years ago, it took 2 yrs w/PCP, then 2 yrs w/Endo to send me to GI, for endoscopy, cuz they couldn't figure out why my vitamin D levels struggled even on 50,000 IU 3x wkly and my PTH, parathyroid hormone levels were SCREWY, 32-188. All the while, definitely NOT keeping me in the loop of my own body. Shocker, I had celiac disease, with 90% Marsh 4 score and 10% Marsh 3c., which means my villi were severely flattened. Well, duh! I was probably born with celiac, but have been asymptomatic for 50 yrs and opposing symptoms for 30+- yrs. The Endo and GI were so PROUD OF THEMSELVES, they forgot I was still having serious issues. I was diagnosed as secondary HPTH due to malabsorption (celiac) issues. But I also had hypothyroidism, that is SO different for everyone. I only got meds for it, to shut me up. I have since learned, if you truly have hypothyroidism, you need to be on medication for life, it doesn't get fixed. My body does the best that it can, when my TSH is at a very low level. Get all thyroid hormones checked AND make sure you do not take any supplements with much Biotin in them, it will mess up your results; I wish the doctor would have told me that. Now, only due to a CT pancreas description, no one told me about, I had to ask....6 months later, nothing to do with the pancreas, I now have Tertiary /Hyperparathyroidism, and elevated calcium and need surgery to remove 3 1/2 out of 4 PTH glands. This is not really all that uncommon, as we women age. While you are seeing the endocrinologist, get all the tests you can. I am not saying you have HPTH or elevated calcium, but it is not diagnosed with 1 set of blood tests, it takes several, to see the "trend" in your body. At 65, and I still have a few brain cells that are good, I had no clue about the BIG impact calcium has on many of our body and brain functions. Too low, is very bad, too high is very bad. You didn't mention your age, but if you have not had one, I would advocate strongly for a DEXA bone density scan. Even just my celiac had done enough damage to put me into early onset osteoporosis, also known as osteopenia. Be tough with the endocrinologist and other doctors, get very very particular and pushy. I hate getting old 😱ShelleyW