Connect
← Return to Newly diagnosed with Neuropathy - Advice?
Discussion
Newly diagnosed with Neuropathy - Advice?
Neuropathy | Last Active: Sep 12 8:15am | Replies (49)Comment receiving replies
Welcome, @duh1eye!
What struck me first off was your diagnosis: "mild sensorimotor length-dependent large fiber peripheral neuropathy." Yours is pretty much a match for mine. I'd been aware that my balance wasn't "right" way back in the early 2000s, although I hadn't received a PN diagnosis until August of 2022.
You've asked a superb question: If I could return to the early months of knowing I had PN, what do I wish I might have known back then? The answer? Many things. But I can place those many things in two categories: LEARN (all I can about my condition) and KEEP MOVING (never let my condition get me to "call it quits" with things I like to do).
It's been two years since my diagnosis, and yet I'm still learning (@johnbishop has suggested the Foundation for Peripheral Neuropathy site; FPN's recorded webinars are a semester's worth of learning in themselves), and I'm still moving (I smile to see I have Twyla Tharp's "Keep It Moving" on the table beside me)
I realize my answer to your question is simplistic; however, LEARN and KEEP MOVING are the two pillars supporting my wholeheartedness as I continue living with PN.
Cheers!
Ray (@ray666)
Replies to "Welcome, @duh1eye! What struck me first off was your diagnosis: "mild sensorimotor length-dependent large fiber peripheral..."
Connect
Ray, your answer may be simple, but profoundly important. Fortunately, I’m plugged into Pilates and a personal trainer, each once a week, and I faithfully track my daily steps, but I plan to “step it up,” as it were. And research and learning is, and always has been, an important part of my life, so finding out about any suggestions for resources, is more than welcomed. Since we have a similar diagnosis, I’m curious as to whether your symptoms have advanced much since your diagnosis. Thank you for your response, and also your support. I truly appreciate it.