The ways others react to news of your prostate cancer

Posted by johnt0707 @johnt0707, Jul 7 5:42pm

Wondering what kinds of comments/encouragements those with PC get when others learn of the disease -- or hear updates on your progress?
I've found most lean toward "You've got this!" and "Hang in there" with an occasional outlier like, "Well, if you have to get cancer, you've got the best one."
This group is a wonderful community of encouragers.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@northoftheborder

After living over 2 months barely able to eat after my spinal surgery, I realised what a unappreciated gift an appetite is. I hope yours comes back soon.

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Thanks. Ate an entire chicken pot pie last night and loved it so maybe some progress.

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@scottbeammeup

Thanks. Ate an entire chicken pot pie last night and loved it so maybe some progress.

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That's amazing! My appetite came back gradually -- I'd start out thinking I was hungry when my kids or spouse brought a wonderful meal to me in the hospital, then have to stop after 3 or 4 bites. Over time, my endurance improved, and I'd make it to 1/3 or 1/2 way through a portion before I had to stop. But my big turning point was when I got the special card in the Rehab Centre approving me to transfer from the bed to the wheelchair unsupervised — I started making my own tea and PB toast in the lounge every day at breakfast, and suddenly it was like the clouds cleared and eating was wonderful again.

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All good comments and experiences we can learn from. Including the anger - - just let 'er rip!
I've seen the disappearance of friends (and of family though in other, similar situations) but in a different medical context. My wife of 53 years had Progressive MS (multiple sclerosis) for 20+ years. She eventually became quadriplegic though her mind was as sharp as ever throughout. Many friends just seemed to evaporate. And the real shame of that is that loneliness can be the most hurtful 'comorbidity'. The best 'medicine' was that our loving (though small) family and some dear, thoughtful friends, stayed close and even over some long distances, in touch.
I'm certainly not a counselor nor a shrink but I can prescribe that you treasure those connections and keep them lively as you appear to do now.

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@scottbeammeup

Those close to me always start a conversation with "Are you doing OK?" vs. the old "How are you?" and I answer "yes, thanks for asking" and then, thankfully, they treat me the same as always. Some people I considered acquaintances have become friends and been extremely kind and helpful. Others I thought were friends have disappeared.

One of my side effects has been excessive weight loss. I feel nauseous a lot of the time and just don't want to eat. I have had people comment about that and, indirectly, try to "help" by bringing me lots of high calorie baked goods when they come to visit.

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First I have gained "some" weight since treatment began. Through out my life I was always considered skinny. Oh you should eat some more, like I wanted to personally be that skinny. Yes I'm a little off topic but when I seen the comment about people commenting on your weight loss it bothered me. You wouldn't tell someone they are heavy, why is it okay to comment on the skinny person. Okay, rant down, Scott, sorry I used your post to rant. Best to all.

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@stevecando54

First I have gained "some" weight since treatment began. Through out my life I was always considered skinny. Oh you should eat some more, like I wanted to personally be that skinny. Yes I'm a little off topic but when I seen the comment about people commenting on your weight loss it bothered me. You wouldn't tell someone they are heavy, why is it okay to comment on the skinny person. Okay, rant down, Scott, sorry I used your post to rant. Best to all.

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That was a good rant. You're right that outsiders don't have a right to comment on your body, whether it's heavy, light, tall, short, recovering from chemo, or in a wheelchair. It sucks to be objectified like that (as any woman can tell us).

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