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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 2 hours ago | Replies (202)

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@mwhitejasp

I was experiencing sinus pain. After visiting two ENTs they said my pain wasn’t coming from my sinuses. They suggested I see a Neurologist. I visited my internist and he ordered an MRI and my meningioma lit up like a lightbulb on the screen.

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Replies to "I was experiencing sinus pain. After visiting two ENTs they said my pain wasn’t coming from..."

I also had pain in my left sinus. And my left nostril burned frequently for no reason. I went to the ENT 3 or 4 times thinking I had a sinus infection. I was always told no. I went to an endodontist thinking the pain in my sinus was b/c I needed a root canal. (Was told by my dentist that could be the reason for the sinus pain.) 5 years after the aforementioned symptoms started I had tingling down my left arm. To rule out a stroke an MRI of my brain was ordered. I didn't have a stroke but the meningioma was discovered. My primary care doctor said, and I paraphrase, we find meningiomas all the time in older people when we are scanning for something else. Don't worry. They're usually always benign. I'm not a hypochondriac and trusted in that; I didn't go to Dr. Google and read too much about meningiomas. But my symptoms kept getting worse and a year later I scheduled an appt. with a neurologist. He personally reviewed my MRI and said, "You need to get this taken care of." The meningioma was now 1/16th of an inch from my optic nerve. The neurologist suggested radiation as he said the meningioma was in a tricky location to operate. I consulted with a neurosurgeon at UCSF and he said the first choice of treatment is always to remove them if you can. And he didn't agree with the 2 other doctors who said the meningioma was too close to the optic nerve to operate. The end of the story is I did have the craniotomy. The meningioma was successfully removed without damaging my optic nerve. The surgery was not any worse than the mastectomy I had 5 years prior. In fact, in a lot of ways it was easier. My nursing care at the University of California in San Francisco was stellar. I think perhaps I've rambled on too long but actually meant to respond to your inquiry that UCSF is rated number 2 in the United States for neurosurgery. NYU is rated number one. So if you're on the west coast I'd go to UCSF and if on the east coast NYU. Of course, I'm sure the Mayo Clinics are good as well. It's your brain. You need the best of the best.