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Aortic Aneurysms – Introduce yourself & meet others
Aortic Aneurysms | Last Active: Dec 11 7:12pm | Replies (581)Comment receiving replies
I completely understand , I have BAV and I’ve encouraged both my boys to be screened for bicupsid valve and aneurysm . I’ve had weird things happening so I wanted to be screened for connective tissue disorders . Maybe once I finally get an appt with a cardiologist and will ask him. I wish you well and thanks for replying:)
Replies to "I completely understand , I have BAV and I’ve encouraged both my boys to be screened..."
Hey I'm also female with BAV and ascending aorta 4.2 (plus some valve regurgitation). You're situation sounds really similar to mine. I'm 45 and am just finding out about BAV. I had been complaining to GP for years about some strange symptoms that once I looked them up seem like they might be connective tissue disorders. Pretty sure my Dr just thought I was a hypochondriac. Best wishes in finding answers
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I did the same, my cardiologist is not only an expert in aneurysms and bicuspid valves but also works with a team of geneticists as he does research regarding those subjects. He actually suggested I got tested and asked me to participate in a research study to identify genetic markers for aneurysms (my siblings and mom participated too). He also got my children tested for bicuspid valve and MRIed for possible aneurysms (all clear). That’s why I think it is so important to have a cardiologist that specializes in the subject, I’m blessed to have one.