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Prostate Cancer | Last Active: Aug 21 7:17pm | Replies (8)

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@robertmizek

Your situation sounds almost identical to mine. The surgery can debulk the main tumor and reach local nymph lymph nodes that contain cancer. Let’s hope they get it all!

I’m speculating here, but I’m guessing that you’ll probably be prescribed both first generation and second generation ADT. My oncologist wanted to give me Lupron for first generation ADT but I opted for OGOVYX because the men that I had talked to that had taken ORGOVYX instead of Lupron had less fatigue, less hot flashes, and no depression. That has been my experience too for the last four months. It’s on the expensive side, but I applied for financial assistance and I have zero co-pay. Honestly, if I had to pay it out-of-pocket, I would. I think it’s that much better than Lupron shots. For second generation ADT I am on generic Zytiga also known as abiraterone. I purchase that through Mark Cuban cost plus pharmacy and my out-of-pocket is only $128 per month.

I’m guessing that you’re going to have to receive have to radiation to the prostate bed as well as the pelvic lymph node basin. My surgeon recommended that I make good progress towards continence before starting radiation therapy because at least temporarily it only makes incontinence and leakage worse. I started radiation two months after starting ADT which worked out to be four months after surgery. If you need information about how to cope with side effects from radiation when the time comes, please feel free to hit me up with a private message.

I’ve been told that only five years ago, they were unable to treat patients with similar conditions to you and me. Thank God times have changed. In the words of my wife, we’re in the same boat and it’s not the Love Boat because of ED from surgery and ADT, but it’s not the Titanic either because we both should have a chance for a cure.

Good luck on your journey.

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Replies to "Your situation sounds almost identical to mine. The surgery can debulk the main tumor and reach..."

Thank you. I will be hitting you up with tons of questions!!