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Polymyalgia Rheumatica (PMR) | Last Active: Aug 29 12:15pm | Replies (26)

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@dadcue

You can probably find a rheumatologist that would be happy to prescribe low dose Prednisone to you for the rest of your life. My rheumatologist actually said, "if I only needed 3 mg or less there wouldn't be too much concern." My rheumatologist said this prior to wanting me to try Actemra.

Since I was on Prednisone doses in excess of 10 mg daily for 12 years, my rheumatologist's comment about not being concerned wasn't pertinent to me. I had to rectify "quality of life" with my strong desire to get off Prednisone. That wasn't that difficult for me to do because Prednisone wasn't my ticket to a quality life. When I read all the obvious Prednisone side effects people have on forums like this one it makes me wonder how anyone wants to take Prednisone for more than a couple of years.

My personal belief is Prednisone is a good "short term" medication for PMR. The consistent thing I read in the medical literature is the "long term dependence" on Prednisone isn't good no matter what disorder is being treated. More and more, the medical research is saying even low dose Prednisone isn't good for the long term.

Dependence isn't an addiction when you realize the body depends on cortisol produced by the adrenals to regulate inflammation. When considering the adrenal suppression that occurs when we take Prednisone there is a choice we need to make. Either we allow our adrenals to function as they should or we continue to take Prednisone as a cortisol substitute.

The real dilemma is finding an alternative to Prednisone to treat PMR. People with PMR need to advocate for alternatives to prednisone rather than promote the "quality of life" of long term Prednisone use. Fortunately, I agreed to try Actemra. My rheumatologist and I both agree I'm "better off" being on a monthly infusion of Actemra and not taking Prednisone for the rest of my life.

When Prednisone was initiated for PMR, I was told it would be for a year or two and it ended up being 12 years. From my long term experience with prednisone, I have a difficult time telling anyone they should do the same. My quality of life didn't improve until after an alternative to Prednisone was found.

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Replies to "You can probably find a rheumatologist that would be happy to prescribe low dose Prednisone to..."

I agree that using the term ‘addiction’ with prednisone is misleading at best and shaming at worst. A doctor should know better. Are diabetics addicted to insulin? The problem with prednisone, as I understand it, is that it can dissolve your bones, even at low doses. And of course there are a host of other unpleasant side effects that can come with it. The sooner we can encourage our adrenals to take over the better. But ironically, it must be done slowly.