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Husband with AML facing a stem cell transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 7 11:43pm | Replies (117)Comment receiving replies
Hi Lori!
Thanks so much for checking in! The biopsy resulted in “No evidence of disease!” The best news we could have hoped for. The doctor told him that no one knows if a relapse will ever happen, but given this most recent result, Dane should “dare to dream” about his future. He reminded Dane that the BMT is curative and he feels privileged to offer this to his patients when many of his colleagues don’t have this option for their patients.
Today is day 70 and in just the past few days Dane is feeling a little less nauseated and able to cut back on those meds. He’s walking daily too. We even drove out to our lake house 2 hours away for one night this week. That’s a big deal to us! His most recent labs show all stable and his platelets came up to the normal range. Yay!
He is also maintaining magnesium levels and no need for IV Magnesium the past two weeks!
However, amidst all this positive news, he noticed a swelling in his abdomen over the weekend. Turns out he has an inguinal hernia, according to the ultrasound results! Being referred to a surgeon, but we haven’t yet discussed this with his stem cell doctor. I mean, really?? After everything he has been through, this is nothing in comparison, but geez….one more thing to deal with.
So once a surgeon assesses it, we’ll know more about how to mange it in the meantime.
Together we are working on envisioning our future with positive energy and language describing our present and future realities.
One day at a time…
Sending you air hugs!!
Mary and Dane
Replies to "Hi Lori! Thanks so much for checking in! The biopsy resulted in “No evidence of disease!”..."
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Good morning! The positive news of the BMBX was the boost I think you and Dane both needed right now! I’m so happy to hear there’s no evidence of disease! I definitely know the elation we feel when reading or hearing those words.
Another one I love is, “You’re unremarkable!” Hahaha. Truly, I suffer no insecurity when my doctor tells me I’m unremarkable. We joke about it every time because we all know, I’m anything but! 😂😂. Joking aside, I’m thrilled for your Dane’s good news!
Seeing that he’s at day +71 now, I have a feeling this month will see significant improvements on multiple levels! Just being able to even consider reducing those anti-nausea meds is a huge leap forward. It took me a while after finally being off those to get the normal ‘gut’ rhythm back in sync. Greek yogurt with a teaspoon of ground flax every day helped significantly.
Also, being able to resume some normal activities like going to your lake house for a few days is a real morale booster! I admit freely, I ugly cried when I finally got to return to my happy place at the lake after almost 5 months. Just being in the forest with all the trees, birds and the lake. I felt the power of nature infusing me with life again. I’m not a woo-woo person but for me, nature powerful and healing. This had to feel like a huge step forward for Dane!
Sounds like maybe a teeny step back with the hernia. Hopefully nothing urgent…from my limited experience with family men and a couple of my husband’s friends, their surgeries were minimally invasive and very common. So we’ll go with that, right? And really, in the grand scheme of things after enduring the SCT, your super man will live to fight another day…just not bench pressing his weight or tossing around 80 pound bags of concrete mix! 😅
By the way, I’m Day +1883 today! LOL.
Air hugs all around!! 🤗