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DiscussionHusband with AML facing a stem cell transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 7 11:43pm | Replies (117)Comment receiving replies
Replies to "Hi Mary and Dane…been pretty quiet from your corner of the world. How’s everything going? How..."
Hi Lori!
Thanks so much for checking in! The biopsy resulted in “No evidence of disease!” The best news we could have hoped for. The doctor told him that no one knows if a relapse will ever happen, but given this most recent result, Dane should “dare to dream” about his future. He reminded Dane that the BMT is curative and he feels privileged to offer this to his patients when many of his colleagues don’t have this option for their patients.
Today is day 70 and in just the past few days Dane is feeling a little less nauseated and able to cut back on those meds. He’s walking daily too. We even drove out to our lake house 2 hours away for one night this week. That’s a big deal to us! His most recent labs show all stable and his platelets came up to the normal range. Yay!
He is also maintaining magnesium levels and no need for IV Magnesium the past two weeks!
However, amidst all this positive news, he noticed a swelling in his abdomen over the weekend. Turns out he has an inguinal hernia, according to the ultrasound results! Being referred to a surgeon, but we haven’t yet discussed this with his stem cell doctor. I mean, really?? After everything he has been through, this is nothing in comparison, but geez….one more thing to deal with.
So once a surgeon assesses it, we’ll know more about how to mange it in the meantime.
Together we are working on envisioning our future with positive energy and language describing our present and future realities.
One day at a time…
Sending you air hugs!!
Mary and Dane