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Desperate: Is there any hope for neuropathy?

Neuropathy | Last Active: Oct 23 6:49pm | Replies (118)

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@bettyg81pain

I am going through all of the tests right now. What kind of reaction did you have to the acetyl carnitine have you had and what other nerve supplements other than alpha Lipoic acid have helped you. What were the results from the rheumatologist and where are you now with what your doctors suggest?

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Replies to "I am going through all of the tests right now. What kind of reaction did you..."

@bettyg81pain

Here is a link with some of the supplements that have helped me and my small fiber neuropathy/peripheral neuropathy.
1.
https://healthyfocus.org/10-proven-vitamins-and-supplements-for-neuropathy/
2.
https://modernneuropathy.com/8-best-supplements-for-neuropathy/
3.
https://www.healthline.com/health/peripheral-neuropathy-natural-treatments
I personally never had any bad reactions to the neuropathy supplements, capsaicin creams or lidocaine pain patches. I had spinal injections that helped with spinal stenosis/nerve compression and radiculopathy. You want to make sure to not take too much to become toxic. Improving diet and adding some of the supplements have helped me.

I was also iron deficient (oxygen levels lower) and addressing that, spine health issues, thyroid Hashimoto’s/hypothyroidism, sleep apnea (oxygen levels lower) and getting breast implants removed (breast implant illness detoxification of silicone liners) has helped me feel better. My autoimmune flares are down, my neuropathy in my feet/calves, restless leg syndrome, muscle spasms, etc. has improved. It has taken about 8 years to address many of the symptoms and depression due to chronic pain/health issues so don’t give up advocating for yourself, researching your symptoms and diagnoses/treatment options, getting doctors that listen and respect you and they show they want to help improve your quality of life. Make sure to prioritize self care because if you don’t put your oxygen mask on first, you can’t really help others or be at your best.

May God bless you and be with you on your health care journey.