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where can i get help with painful burning neuropathy after covid

Posted by sr6567 @sr6567, Aug 20 9:12pm

i have sinus infection chronic fatigue and suffered multiple pre passing out spells and brain fog after 2nd covid 1/2024 with tinnitus and then 2 months 12 weeks later neuropathic pain started in many places
i had covid in 2020 and had the begging of this after covid pneumonia in the hospital a week finally was almost back to normal and then i got covid again 4 months after my vaccine and relapsed after paxlovid. i had hearing loss and some dizziness the first covid
I have tongue and neck and arm and shoulder and hand burning that is tolerable
i have hx hysterectomy and chronic pelvic pain that got soo much worse after this last covid. my feet are much number and i have burning in pelvic bladder . i heard that IVIG might help long covid neurolopathy
i am still waiting to get into see a neurologist . i have been on waiting list for months . do you know if Mayo clinic or other center can diagnose and treat this ?

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Jill Christine | @jillchristline | Aug 20 11:19pm

sr6567 @sr6567 Hello!
You are on a journey my friend. It seems that each Peripheral Neuropathy (PN) case is unique. What works for one or some may be different for you.
You can get a handle on this, SR, by trying various remedies you find here.
Here is mine: Gabapentin 900mg 3x per day, Cat's Claw (a vine from Amazon with arthritic qualities), and I smoke marijuana which greatly helps and reduces blood pressure. A whiskey nightcap help me sleep and gives a little feeling of "whoopee" from time to time.
I have to learn to live with PN since there is no cure to date.
I don't know how I got this disease.
But, keep us posted please as to how you are doing!
Cheers, Jill the Pill

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celia16 | @celia16 | Aug 21 5:21am

The neurologist will be able to review your history and order tests. I hope you will get answers and help. Have you been checked for vitamin deficiencies, had MRI or EMG?

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1 reply
thereseliz | @thereseliz | Aug 22 7:07am

Following.
My feet are painfully cold off and on since Covid.

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cats0cats2 | @cats0cats2 | Aug 22 1:55pm

sr6567 I believe that my main issue is thoracic polyradiculopathy. PLUS some kind of neuropathy in my right upper leg and two different fingers on each hand and Bells Palsy. I think the thing that relieved me from the excruciating pain was three rounds of prednisone I had. The one doing the most to help was likely the infusion of prednisone given while I was in the HP for 10 days. Slowly but hopefully surely progressing ever since. For others with thoracic polyradiculopathy this might be helpful. Just watched these video's about thoracic polyradiculopathy: https://www.youtube.com/watch?v=lQcO1EIydgA&t=41s and https://www.youtube.com/watch?v=E46KHY-TRtw

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sr6567 | @sr6567 | Aug 22 6:24pm
In reply to @celia16 "The neurologist will be able to review your history and order tests. I hope you will..." + (show)
@celia16

The neurologist will be able to review your history and order tests. I hope you will get answers and help. Have you been checked for vitamin deficiencies, had MRI or EMG?

Jump to this post

i will finally get into a neurologist in sept.

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