Started about 10-12 yrs ago with pins and needles in my one foot and then went to the other foot.
My lips upper and lower also were numb,as were both of my cheeks.
Had MS ruled out by brain mri, and over time I was on all meds like Gabapentin,etc.
Other symptoms started over time like problems with my bladder leaking, and not having feeling in my rectum when having a bm.
Had no feeling when I was being catheterized either.
One neurologist referred to it as having a “pelvic anesthesia”.
Had bladder sling done but still had leaking issues.
From there traveled upwards to numbness in my abdomen and legs.
Can’t feel anything because both feet are totally numb, and so are my legs.
My balance is awful and I feel like a weeble.
I use a cane and a walker so I don’t fall.
Besides all of my issues I was diagnosed with CIDP
My nerve pain was daily and in different spots on my feet and legs.
Electrical shocks were worst.
Now my feet hurt so bad, I can’t stand to walk on them at times.
Pins and needles always there, so I use salon pas pain patches, and take ibuprofen and Tramadol daily.
My quality of life sucks because I can’t even go shopping like I used to because I can’t walk around much befor my feet hurt and I get tired.
I’ve had IVIG infusions few years ago with no relief of any of my symptoms, and starting next month I will be having Rituxan infusions with a new neurologist in Phoenix AZ where I’m moving to.
He seems to think this will help me.
I’m hoping it will!