← Return to Has anyone successfully weaned off prednisone without using a biologic

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@thenazareneshul

Yes, I did it back in 2015. Though, I'm not sure you would call it successful. I did. The PMR roared back, but I'd gained 90 lbs by then, so I just had to do it. It turns out it the weight gain was going to kill me. So, getting off the Prednisone was lifesaving. It also was putting me on the road to going blind. I've had to have 3 laser eye surgeries for the Glaucoma the Prednisone caused. And my eyes have to be checked many times a year now, to catch it, and treat it. Going off meant just reducing it as slowing as I possibly could. I mean by using 2 mg Prednisone tabs at the end. I also used Pain Management's services to endure the pain and they, of course, always gave me the lowest possibly hydrocodone with Tylenol. AND steroid shots into whatever joints hurt the worst. The amounts (I was told) of steroids injected, is small and localized so they don't act like when we ingest it body-wide. See if you can get in with Pain Management? One caution. While all this was happening, and during the going off, as well as after (big time) every prescriber told me, automatically, to take Ibuprofen or wrote script for prescription NSAIDs. So, that was most of the time from 1992 to now. Turns out, doing that has harmed my kidneys and some of those prescribers knew it. I gotta get over that. Don't let them do that to you. Watch it yourself via your labs, or better yet, have your doctors do it.

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Replies to "Yes, I did it back in 2015. Though, I'm not sure you would call it successful...."

What you have described is one of the reasons why long term prednisone use can end up being detrimental to your health. There are times when the side effects from medications exceed the benefits and Prednisone is no exception. It is nearly impossible to abruptly discontinue Prednisone when it is necessary.

"So, getting off the Prednisone was lifesaving."

I agree with you ... it was for me too. However, I needed a biologic when I was unsuccessful at tapering off prednisone for 12 years. I'm in awe of anyone who succeeds without the help of an alternative medication.

I tried several alternatives until my rheumatologist found something that worked. My medical records shows a list of "failed" medications. I suspect the other medications failed because they didn't get me off Prednisone rather than they didn't help to manage PMR pain. Even when my rheumatologist submitted the request for the biologic -- what was emphasized the most was an "inability to taper off Prednisone."
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