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Conflicting Advice

Osteoporosis & Bone Health | Last Active: Aug 23 4:47pm | Replies (9)

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@babbsjoy

MicheleM @saab

I think your idea of getting a second opinion from someone like an endocrinologist who specializes in osteo has merit. You didn’t say how severe your osteo is? Not to be an alarmist, but I have learned from others on this site that just because you feel strong and fine and pain free, does not mean you will not fracture unexpectedly from some unfortunate movement or fall. So, especially if your numbers indicate advanced osteo, please read up on the things NOT to do while you consider your treatment options. That helped me a lot during my wait to be seen and tested!

I initially went to a rheumatologist that my PCP referred me to, when my spine dexa came out to be -3.6. (Not steroid induced) A long story, but his treatment plan for me was fosomax, and when I surely would not be able to stand it (GERD), Tymlos, then a lifetime of Prolia. He wasn’t even going to try to get Tymlos approved through insurance for initial treatment, thinking it futile.

I then went to an osteo specialist. She did extensive testing and got me approved for Tymlos as an initial treatment. In the mean time, she sent me to knowledgeable and cautious PT who helped me a lot with safe exercises and balance.

There is a whole world of information on osteo that we never knew existed until it became an issue! I wish you blessings and wisdom as you wade through it all and find out what is best for you!

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Replies to "MicheleM @saab I think your idea of getting a second opinion from someone like an endocrinologist..."

Thank you, I need the blessings and wisdom. You'd think there would be some sort of consensus to follow. My Rheumatologist could be right although he never talked about the differences of antiresorptive and anabolic medications. But then again, I feel the Endocrinologist might have more experience in treating osteoporosis. LOL. I keep changing my mind.