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Does anyone have EPI (Exocrine Pancreatic Insufficiency)?

Digestive Health | Last Active: Nov 29 8:59am | Replies (110)
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@jkarmazin

I had the MRCP MRI and it has been read by 2 Radiologists and a GI Endoscopic Specialists and they all of different opinions. One says I have a cyst on my pancreas. One says I have Chronic pancreatitis, which I don’t have any of the symptoms. They all don’t think I need EUS, but requested it as I am so afraid of Pancreatic Cancer. I also have dilated bile ducts and one person said ampullary Stenosis. Wanted a stint so that I don’t have to take
Enzymes, but then heard you have to have new stints every 3-4 months. Is there no good solution? Can’t afford the Creon. AbbVie is so slow to get back to me about help with the cost.

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Replies to "I had the MRCP MRI and it has been read by 2 Radiologists and a GI..."
cghodge2 | @cghodge2 | Aug 23 12:05am

Hello. I understand what you are going through as I am in a similar situation with an elevated bile duct. I can relate to feeling nervous about it. I recently had an EUS that didn't show anything, so now I am scheduled for a second EUS at Virginia Mason. My stomach issues led me to visit my doctor, which then resulted in a CT scan and an MRI. There is a lot more to my story that I could share with you, but I mainly wanted to reach out to let you know that you are not alone. I am keeping you in my thoughts and prayers during this time.

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