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Started Repatha - Side Effects

Heart & Blood Health | Last Active: 3 days ago | Replies (62)

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@con123

Not sure this all relates to this thread, but I am considering all options. I have been taking Lipitor 20 mg for almost 2 years, with the side effects of muscle pain and weakness, cramps, and tendonitis. I have discussed with doctors and they decreased me to 3times a week, which did not help; allowed me a one week break, which didn't. help either. I finally got a note in my chart from my primary care mentioning I might need a statin break. I sent my cardiologist a long note about how my quality of life has gone down since starting statin therapy and that I hurt everyday. I've been to acupuncturist, PT, OT, massage therapy and do daily exercises. Recently had my lipid panel done and total 207, HDL 88 and LDL 85. He sent a note in the portal, "good job managing your levels, hope you are tolerating the statin". --- NO, I am not tolerating. That was over a week ago, and I just stopped taking the Lipitor. I've missed 4 doses in the past 10 days and I have at least 50-75% less pain overall. I don't get out of bed stiff, I don't hurt when I turn over in bed and I require less stretching to relieve pain. He would not give me his permission to do this. He mentioned trying a different statin, but I think they all do the same thing. Would Repatha be something I ask him about? I am not really much of a cardiac risk - calcium score of 0, blood pressure under control, no diabetes... I honestly do not feel I should need to live in pain and restricted activities just to lower my cholesterol a bit.

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Replies to "Not sure this all relates to this thread, but I am considering all options. I have..."

I honestly can feel your pain. I was put on statins about 15 years ago. I had the same reaction. I tried to tell my doctor, but he wouldn’t hear it. Tried different statins, different doses, all the same. I was going to have to quit work and be disabled. That’s ridiculous. I took myself off of the statin. The next time I saw the doctor he said he was going to brand me a “non-compliant patient.” That was it I found another doctor. Before I committed to him I was assured that he would listen to me and manage my heart disease without statins. Fast forward. I completely changed my eating, started yoga, got a Fitbit and walk 6,000-10,000 steps a day. I was feeling great and my Chlorestrol was manageable. Then more than a decade later all of a sudden my Chlorestrol shot way up. I started talking Repatha. It brought it down, but I’m not sure whether I will continue Repatha or not. I tolerate it much better than statins, but I may quit it, too and get stricter on my life style. I want to feel good or what’s the point?