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DiscussionDesperate: Is there any hope for neuropathy?
Neuropathy | Last Active: Oct 23 6:49pm | Replies (118)Comment receiving replies
Replies to "@cecelia19 I am a 55 year old female with idiopathic small fiber neuropathy/peripheral neuropathy, congenital spinal..."
I can’t thank you enough for your detailed reply and description of your condition. I haven’t had most of those tests and have to wait to see my neurologist until 10/8 as he is out on a medical leave. My PCP is referring me to U of M’s neurology/pain department (I live in Michigan) but will go to Mayo if they can’t give me an answer. I’ve been to Mayo eleven times, ten of those with family members who have been ill. I know my way around the joint and feel very comfortable there. Your response makes me realize that there are many more avenues that need testing than I would have anticipated. Today I had some relief from the Medrol steroid dose pack I started this morning. I assume that means there is an inflammatory component to this pain. Are you comfortable now?
I am going through all of the tests right now. What kind of reaction did you have to the acetyl carnitine have you had and what other nerve supplements other than alpha Lipoic acid have helped you. What were the results from the rheumatologist and where are you now with what your doctors suggest?
@cecelia19
I forgot to mention that Cymbalta/Duloxetine is prescribed for chronic pain, neuropathy, osteoarthritis and fibromyalgia. Not sure if this is something you would want to talk to your doctor or neurologist about to see if it can help you better manage the nerve pain.