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Mixed Dementia and Alzheimer’s

Caregivers: Dementia | Last Active: Aug 25 11:15am | Replies (9)

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@celia16

I do feel for you trying to do this alone. Caregiver fatigue is real. It can take a toll on your health, both physical and mental. Get all the help you can get. I’ll share what I know about mixed dementia.

I was responsible for my older cousin when she got sick. She lived alone and ran her own household, with some physical issues that required a cane. However, she suddenly became unable to care for herself and was very confused. I tried to care for her in her home after her primary and a neurologist with full testing, diagnosed her with severe vascular dementia. Due to me needing to work and her needing 24/7 care, I placed her into a Memory Care facility. They were trained to manage her care and it was a good decision for her. She did quite well there (I visited often, some weeks going daily, which I do not recommend) and she survived for 6 years, having been diagnosed at age 63.

During her time in Memory Care, a psychiatrist that she saw added the diagnosis to Mixed Vascular and Alzheimer’s. During my reading, it appeared the main difference was the rate of progression. And, normally Alzheimer’s patients maintained their mobility longer. With Vascular, my cousin because wheelchair bound and fully incontinent within a couple of months. It’s my understanding Alz progresses more slowly and gradually, which I have observed with my father. (No blood relation to my cousin.).

Resistance to care was huge with my cousin. She was resistant to bathing, changing clothes, taking meds, eating, etc. Trained professionals handled it incredibly well.

Imo, a team of support and care are vital. Stress is a major factor with caregiving. I wish you the best and hope you get more input here on this forum from other caregivers.

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Replies to "I do feel for you trying to do this alone. Caregiver fatigue is real. It can..."

Thank you so much for this.
I am looking for a variety of care options now that I have accepted the reality of her condition. As her only child, she has been my confidant and best friend. She was the nanny/grandma to my sons so with all of her support to me over the years, my issue in getting help has been my reluctance to accept her condition.