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High anxiety regarding Reclast or Prolia decison for OP meds
Osteoporosis & Bone Health | Last Active: Sep 22 4:39pm | Replies (165)Comment receiving replies
I learned just a year ago I had very poor bone density and can’t have a back surgery because of “poor outcomes per my ortho doc. He had me start with a bone density NP specialist who started me in January on Prolia. But! I can’t continue it and had to decline it last month because in less than 6 months the price went so much higher. My copay would be $300 for each biannual injection. And the drawbacks are very risky to stopping it. I can’t do Fossamax or any similar meds. Doctor says there are few alternatives that are known to work well. I’m reading everything someone shares here for ideas. Am unsure that my NP for bone density really wants to try anything else.
Replies to "I learned just a year ago I had very poor bone density and can’t have a..."
@cobalt can you do Reclast? Generally we have been told to do a bisphosphonate to deal with Prolia rebound but there was some info on one thread here that Evenity helped maintain and even grow bone a small amout (2.3% as I remember) after Prolia. That was a study that may not yet be in practice but if you have no alternatives, maybe your doctor would try it, I have read ("Great Bones") and been told (doctors, and Ben Leder's video on YouTube on Combining and Sequencing Approaches) that Forteo and Tymlos are not good choices after Prolia. So what's left? If you cannot take bisphosphonates, then Evenity is the only one left. (That may have been one small study, so ask your doctor...the link is on this thread https://connect.mayoclinic.org/discussion/high-anxiety-regarding-reclast-or-prolia-decison-for-op-meds/?pg=2#comment-1126992)
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Back surgery is what I fear due to my low bone density. My back hurts 24/7. Getting x-rays and MRI next month. I just want an answer why it hurts so much. I hope you can find a Osteoporosis specialist that can guide you in the right direction. These drugs are quite expensive. I had to pay thousands of dollars for Forteo before my Medicare kicked in. Horrible!