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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@timpowell84

Lisa they changed the names of these headaches over the years and misdiagnosed them for years started off with migraines then it went to clusters then it went to retro ocular then it went to hypnic headache I don't think anybody knows what to call itI call it excruciating eyeball pain that wakes me up at the same time each night I have them causing sleep deprivation and all the ill effects that comes with it including hallucinations aggravation suicidal thoughts depression I'm looking for somebody who knows how to treat eyeball pain and feels like somebody's pushing on my eyeballs from the inside

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Replies to "Lisa they changed the names of these headaches over the years and misdiagnosed them for years..."

Thanks for the clarification, @timpowell84. That is confusing to have the names of these headaches evolving like that. I am terribly sorry you are in such excruciating pain.

I would suggest that you contact Mayo Clinic and ask to see a headache specialist in neurology
http://mayocl.in/1mtmR63.

Hi @timpowell84 - wondering how you are doing and how the eyeball pain and sleep are going?