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Severe Tortuous & Redundant Colon
Digestive Health | Last Active: Nov 25 4:47pm | Replies (99)Comment receiving replies
mrd, when you have the time and energy would you please clarify the following from your post:
1. What is SOB
2.your hiatal hernia, is pushing on your lungs. What does it feel like? What imaging showed the hernia pressing on your lungs?
3. Too difficult procedure: what procedure? What procedure and if you ignored the dr. , would you have this procedure? Second surgeon, what was your first surgery ?
4. How did your pulmonologist save your life?
5. Where are the ulcers? What do they feel like? Should they be removed?
6. Years of constipation...what caused this? Is it ok now?
7. How was your GI bleed caused and diagnosed? How can it be ignored?
I have many of the same issues: iron deficiency anemia and must use infusions, due to celiac disease severe damage in small intestines so malabsorption will be a problem forever, 17 years of CIC💩‼️, all GI treatments useless. I use miralax at high doses for many years (okay w/GI), to keep 💩 quite un-thick, thin mush to diarrhea. I know I asked a ton of questions.... I am getting nowhere. 17+ years of fighting, I have literally almost zero energy to keep up fighting. Thanx ShelleyW
Replies to "mrd, when you have the time and energy would you please clarify the following from your..."
The pulmonologist did a simple CBC on 2/28/24 and my hemoglobin was 9.7. It dropped to 8.9 on 3/20/24 which was my first of 3 iron infusions. I went undiagnosed with iron deficiency anemia because my PCP dismissed my question if I am anemic back in November. SOB worsened and I was freezing cold all winter long
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SOB is the clinical term for shortness of breath. A swallow test revealed that I have limited gastroparesis…. The motility of my GI is affected and the X-ray showed how a small amount of liquid has a difficult time getting through the esophagus because my stomach is pushed up into my chest wall. I have asthma and the Giant size hiatal hernia is pressing on my lungs and I’m experiencing SOB. I was belching in my 20s and the mention of a hiatal hernia wasn’t addressed which I only recently learned from the one surgeon is a symptom of the hiatal hernia. So now I’m 70 and will be going for abdominal surgery next month to somehow alter the size of my hiatal hernia. I was symptomatic when I was awakened in the middle of the night with wretched vomiting. “Oh it’s something that you ate”…. An ordinary meal which wasn’t seasoned is something that I ate ??? Been ignored through the years and I’m not getting any younger now. Had a bout of elevated blood pressure over the weekend 187/115 and I’m already on 2 BP medications. Had to go to the ER by ambulance because I’m widowed (tragically) and spent 12 hours back and forth in the waiting room until a bed became available for me. The sign of the times is that the ER is used as a walk in clinic and it’s only going to get worse