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Chronic severe nocturnal hypnic headaches
Sleep Health | Last Active: Oct 4 1:13am | Replies (240)Comment receiving replies
Let me first start by saying that I have NDPH, not migraines. So my use of Aimovig was more of a hail-mary, last-ditch attempt to find anything that might work. I was approved for 3 months of use, and my third month was a double dose. It made absolutely NO difference in the severity of my constant headache. So sadly, that is the end of that. Aimovig has now been added to the long list of pharmaceuticals that have no positive effect on my NDPH. I read on NDPHresearch.org that some people were getting relief after 6 months on the drug, but I was never able to get more info from that organization. My neurologist said that if I didn't get relief in 3 months, there's no reason why 6 would be better - something about how the drug works, I think. So, back to the drawing board.
Replies to "Let me first start by saying that I have NDPH, not migraines. So my use of..."
I have tried Amy bag it stopped working after 2 months I've tried caffeine that doesn't work I tried to mail it to intoning that doesn't work I tried verapamil that doesn't work I've tried topamax. Doesn't work Demerol morphine Dilaudid Percocet darvocet does it work nothing prevents these headaches and only imitrex takes them away insomnia has set in Ben insomniac for 4 years hallucinations have played me due to sleep deprivation suicidal thoughts aggravation irritation and all the health effects that come with sleep deprivation why can't we find a doctor that can help
I understand Amovig stopped working after 2 months verapamil topamax Percocet Dilaudid morphine Demerol melatonin caffeine pills none of that worked.I suffer from sleep deprivation for 4 years now hallucinations suicidal thoughts irritation aggravation depression the fact that I can't find a doctor that knows how to treat these headaches very discouraging your body gets to where it doesn't want to go to sleep and if I do get to sleep I just don't want to wake up because you wake up in pain but if you tell somebody that they want to put you in a psych ward why can't we find a doctor that's experienced with these headaches there's got to be somebody out there
That's what happened to me after 2 months double dosing aimovig it stopped working so I guess we're just screwed huh?
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Since I’ve read a few people experienced temporary reprieves from the Hypnic headaches, I remain cautiously optimistic since I haven’t had one since 22 December after finishing a hefty round of Prednisone. I’ve been able to eliminate melatonin and caffeine before bed. I still take only 25mg of Amitryptiline nightly. Praying you find some relief. Would love a better understanding of why they occur in the first place.