← Return to Chronic severe nocturnal hypnic headaches

Discussion

Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

Comment receiving replies
@timpowell84

Hi I recently started posting and reading on Mayo clinic connect it seems most of the posts are 2 years or older do you know of any recent treatments or can you refer me to a doctor that's an expert on hypnic headaches I have yet to meet a doctor that has another patient with my symptoms please help me

Jump to this post


Replies to "Hi I recently started posting and reading on Mayo clinic connect it seems most of the..."

I don't know that there are any recent treatments that help hypnic headaches. I think the standards are caffeine, tablet or cup of coffee, before bedtime, not after you have the headache. Also, melatonin and gabapentin are often used as is lithium. I am not aware of anything else. I have read everything I can find regarding hypnics, not that there is a lot. Also, I think it is unlikely you will find a doctor who has treated a lot of us in his/her career. There just are not that many of us. When you have them on a nightly basis it is absolutely exhausting, also it hardly makes you want to go to bed because you wonder how long you get to sleep before the "bang" of the hypnic comes. Try having a cup of coffee before bed, not after you get the headache. Have you tried melatonin? If so, how much? The standard dose for someone using melatonin seems to be 3 mg. That might be a good starting point, but you can certainly go up from there. That amount might have little, if any effect on your hypnics. Good luck. You are not alone.