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Anyone been treated at Mayo Clinic for Ocular Myasthenia Gravis?

Autoimmune Diseases | Last Active: Sep 14 6:47am | Replies (35)
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@michiganjan

Wow, it sounds like Mayo did a great job with you
Interesting that you are on Mestinon Without prednisone and have had success. I do 60 mg of mestinon every four hours, but also once a day 15 mg of prednisone. I assumed it was the prednisone that helped me get osteoporosis.
The droopy eyelid went away as soon as I started taking the prednisone now the issue is double vision which the mestinon helps. Thanks for all your info wishing you continued success and controlling this crazy disease.

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Replies to "Wow, it sounds like Mayo did a great job with you Interesting that you are on..."
wcburns2 | @wcburns2 | Aug 19 10:39am

I’m at 90 mg on the Mestion but because I am also on cell cept I may be getting a boost from it as well. If they take you off prednisone maybe cell cept can be its replacement.
Glad you have something that helps. The double vision is a bummer but there is always hope.

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wcburns2 | @wcburns2 | Sep 14 4:11am

Hi MichiganJan. Just an update The Pyridostigmine 90 mg every 4 hours is working for me. It’s been 6 weeks.

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