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DiscussionChronic severe nocturnal hypnic headaches
Sleep Health | Last Active: Oct 4 1:13am | Replies (240)Comment receiving replies
Replies to "Hi, @timpowell84 - We've had a few other members mention using erenumab (Aimovig), like @hedjhog @msb18..."
Let me first start by saying that I have NDPH, not migraines. So my use of Aimovig was more of a hail-mary, last-ditch attempt to find anything that might work. I was approved for 3 months of use, and my third month was a double dose. It made absolutely NO difference in the severity of my constant headache. So sadly, that is the end of that. Aimovig has now been added to the long list of pharmaceuticals that have no positive effect on my NDPH. I read on NDPHresearch.org that some people were getting relief after 6 months on the drug, but I was never able to get more info from that organization. My neurologist said that if I didn't get relief in 3 months, there's no reason why 6 would be better - something about how the drug works, I think. So, back to the drawing board.
@lisalucier and all, as it seems as if the same medications are used for hypnic headaches as for migraine, I asked “my expert” (daughter) about her medications.
She gets the most help from naratriptan, which is a triptan as is imitrix in type (both triptans) but they are different from each other. Imitrix knocks her out.
Barometric pressure changes are a common trigger and she has two apps that alert her to those changes. Sometimes a headache can be stopped before it really takes hold.
When I was much younger and suffered from migraines the best they could do was prescribing an ergot medication to constrict your blood vessels. That made me so sick it was worse than the headache.
I wish she had time to participate in some of these forums but she is pretty out-straight with her job.
JK