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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@avalosc3211

Hi Kate,
I was diagnosed 1 year ago with MAC. I am very interest in your form to take to appointments, I struggle with what to ask since this is all new to me. If you could share this with me I would be most appreciative. I would also be interested with what meds you are taking that are not making you ill. That is so good to hear. I have put off treatment from the horror stories I have heard about how sick the meds can make you feel. If you don't mind sharing, please email me. Thank you in advance for your time and help. Warm Regards. C

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Replies to "Hi Kate, I was diagnosed 1 year ago with MAC. I am very interest in your..."
Sue, Volunteer Mentor | @sueinmn | Aug 19 10:57am

Welcome to Mayo Connect, and yo our very helpful MAC & Bronchiectasis support group. We prefer to work together on this site, sharing our stories with the group, because there are about 1000 active members right here, ready to help. When we limit ourselves to emailing with one person, we only get one perspective. We respect your privacy, so you can be as anonymous as you want.
It makes me very sad when people talk about the "horror stories" about medication for treating MAC, and the fear they feel. Here on Connect, we share our journeys and talk about how to manage the antibiotic treatment regimen, which can be difficult, but also manageable. In addition, there are non-antibiotic ways to manage, and sometimes even suppress, the MAC infection without antibiotics.

When were you diagnosed, and where, if I might ask, are you reading what you call horror stories?

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