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Scleroderma/Systemic Sclerosis

Autoimmune Diseases | Last Active: Oct 12 10:36am | Replies (19)
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@robinlundblade

I was Diagnosed back in February with scleroderma, Sjogrens and ILD. Positive ANA positive Scl 70
They started me on Prednisone, Cellcept and Retuxamab infusion. It was May I did first round of infusion. My CT last week showed mild progression. I don’t know what to think. Should I be seeing something different on the scans.

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Replies to "I was Diagnosed back in February with scleroderma, Sjogrens and ILD. Positive ANA positive Scl 70..."
kimberlyf | @kimberlyf | Aug 20 12:23pm

Hi Robin, I’m Kim. I was diagnosed with SSc in June of 23 and also have ILD. Unfortunately the rheumy I was seeing wasn’t very knowledgeable and I didn’t receive the appropriate treatment for over a year. I’ve been on methotrexate since diagnosis and started Cellcept 3 months ago. I’m also continuing to progress. I’m actually still trying to get to a dr that really knows how to treat me. I was finally referred to Mayo Clinic last week.

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