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Chronic severe nocturnal hypnic headaches
Sleep Health | Last Active: Oct 4 1:13am | Replies (240)Comment receiving replies
Hello @timpowell84, welcome to Mayo Clinic Connect. I can't begin to imagine how hard it must be to deal with chronic hypnic headaches for 17+ years. Have your doctors been able to offer any kind of help?
Here is an earlier post that provides some information about the hypnic headaches. It may be helpful to read through.
-- https://connect.mayoclinic.org/discussion/chronic-severe-nocturnal-hypnic-headaches/?pg=3#comment-246729
Replies to "Hello @timpowell84, welcome to Mayo Clinic Connect. I can't begin to imagine how hard it must..."
I've tried verapamil topamax caffeine cup of coffee caffeine tablets none of that works verapamil and topamax just made me pass out a lot I have low blood pressure as it I'm a skydiver and I can't be passing out every time I stand up to leave the plane bad things would happen
My pain is retro ocular it's behind my eyes no other place but my eyes do you know any person with that exact symptom?
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I take imitrex that's the only drug that I found that stops the headaches narcotics don't touch it morphine doesn't touch it Demerol doesn't touch it Dilaudid doesn't touch it I tried aimovig for 2 months it reduced for 2 months down to 6 then stopped working went back up to 23 headaches the next month