My Miraculous Recovery from Neuropathy

I have PN for 7 years and have used so many drugs and other modalities to help the severe pain in my feet without success until 6 weeks ago when I saw a new neurologist. I was started on Nortripyline at 10 MG increasing weekly by 10 MG until 50 MG. Now my pain is minimal and only in the very ends of my toes. Now I can actually sleep through the night without pain.
Thi may not be the answer for everyone but it's worth a try.

That’s great news! I’m glad it’s helping you. I haven’t had pain in my feet though. I have had numbness, but that’s bothersome, not painful. It has improved since starting the mega doses of Vitamin B12.

I have had intermittent stinging in my right hand. That does wake me up. It’s intermittent too. Never does it during the day, That bothers me the most. I hope it will resolve. I will take meds, if it doesn’t.

Hi @rorygirl - you may notice I edited your post slightly. As a reminder, we ask members to refrain from political postings. https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/ " 6. Keep politics out of the community conversations." Thank you for understanding.

I had a PT once that ran me through horrible exercises, someday I could barely get back out of bed again the next day. Anyway, during all of that she told me about her son, a minor, who had some heart conditions and she used an adjustment to his body, just under where his rib cage meets in the middle. I was there for leg pain that included all the way down one leg and a whole hip. Neuropathy was the best diagnosis they could come up with it. Which is why they dumped me on her. She suspected some scar tissue from way back in my medical history and did (as a last resort) a pinch pull that was very painful, right about same place. That's also where you would have had chest compressions. It worked on me, for 2 years. No pain at all. Then, it came back, and worse because I then had falls too. I think you are onto something, but I never could get her to do it to me again. She said she didn't remember doing it, two years later when it came back. Internal scar tissue can and does do a lot of things.

To tuckerl96. I read your story. Very interesting. Maybe, the good Lord felt you had endured enough with the breast surgery. Consider yourself very blessed and one of the chosen few. My best to you in your future journey. Take care. Boomarang

Thank you for your comments. I too consider myself very blessed to be unencumbered by this disease it is very debilitating. So far the Neuropathy had not returned. But, I am not amune to other diseases, right now I have COVID. But, then again I am blessed because it is the first time I have gotten it, and so far it is more like a head and chest cold, just miserable. May God bless you.

Thank you for your input. I certainly hope your therapist can remember what she did for you. Maybe it would be worth going to a good deep tissue message therapist and have them work on the area for you. Bless you

My husband has severe neuropathy in his hands, caused by the drug OFEV for pulmonary fibrosis. His neurologist tried him on anti-seizure drugs, used also for neuropathy, but side effects were horrible & he could not continue it.
He has lost all dexterity in his fingers & needs adaptive utensils. He has severe hand pain all night long, uses heat pack gloves or ice pack gloves, with minimal help.
Anyone else dealing with hand neuropathy? He has some neuropathy in his feet but nothing like the hand pain. He is currently on Lyrica 150 mg twice daily but I think this could be increased at his next visit.

tuckerl96 Did you get your COVID SHOTS when they became available to us? I had 3 since the beginning with NO side effects. I wear mask in public & wash my hands thoroughly when arriving home. I also keep sanitizer in my car & attached to my bag. Also, keep my hands away from my face. This is important. This recommendation came from a doctor in the HOT ZONE OF COVID when Covid first arrived. I have this note on my frig. as a reminder before & after being in public. So far, it has kept me safe from Covid. There must be something educational to his words. Some people say Masks don't work. I am a firm believer in them. Doctors when operating wear Masks for a reason. Food for thought. My relatives never took the Covid shots & never will. All of them had Covid 4+ times. Apparently, it DOES NOT build up their IMMUNITY at all. I will continue heeding the doctors instructions and feel safe in doing so. You may continue to get Covid but keep in mind YOU do not know what affects it will have on your body in years to come. My niece lost her taste & smell. If you like being miserable don't get the shots. IF you wish to play it more safe I recommend shots. If you had shots get your booster. There is a NEW Vaccine coming out in September it should take care of NEW sort of Covid called FLIRT. The shots work for me with no side affects. Keep in mind you are NOT IMMUNE to other diseases. You do not need anything else to deal with. I wish you a good & quick recovery. Prayers for you. Regards, Boomarang

I had Covid in the fall of 2021. I haven’t been sick since then and I have never had a Covid shot. I do have some symptoms of neuropathy (hot, tingling feet) that only bother me after I have been sleeping for about 3 hours at night. It is gone when I wake up in the morning. I am so thankful I feel good the rest of the time and can exercise without any pain. I am off all prescription medication.