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Polymyalgia Rheumatica (PMR) | Last Active: Aug 29 12:15pm | Replies (26)
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So far, this has worked for me:
From 10 to 5 at 1 per month.
Below 5 at 0.5 per month, now at 3.5.
Most days now are with no pain. Others with very minor wrist and lower back, hardly worth mentioning. Imaging does show some osteoarthritis in wrists.
I could not guess what the consequences might be of a 2.5 reduction at this point, but glad I am not being asked to try it.
Replies to "So far, this has worked for me: From 10 to 5 at 1 per month. Below..."
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I want to go that route. I tried twice to go from 10 to 7.5 after 2 weeks (I could deal with that, but it wasn't great), then two weeks to 5, and that's when I couldn't handle it. so I'm back to 10. My appointment is in 3 weeks, and I hope she will let me get into a slower taper-1mg at a time. Anyway, I also made a consultation appointment for a second opinion with a rheumatologist, with whom I have come into contact through my expert witness work. he handles a lot of really obscure autoimmune cases. Of course, he is in Beverly Hills, and I'm paying $500 out of pocket for him to review my records, talk to me, and let me know his opinion on diagnosis and treatment. My Rheumy here still says I may have serum negative RA but I have zero signs of it and my onset and symptoms are classic PMR. Sigh. Thanks for letting me vent a bit.