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Grouped Into 3 Buckets

Polymyalgia Rheumatica (PMR) | Last Active: Aug 29 12:15pm | Replies (26)

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@pmrsuzie

I saw my rheumatologist Aug 7th. I have been at 5 mg for awhile. Have gotten below 5 mg before but ultimately had a problem. My markers are good, crp was 1.8. When I asked about tapering, he kinda shrugged his shoulders. I asked about tapering .5 intervals and he said "I don't do that". So he wrote me out a tapering plan alternating 1 mg intervals between 5 and 4mg for two weeks then 4 mg for two weeks, then alternating 4 and 3mg for two weeks etc.. He does not believe in splitting pills. Alternating 0.5 intervals will take twice as long. Dilemma here. I get my markers tested monthly so unless I tell rheumatology I'm decreasing 0.5 intervals , he'll think my numbers are reflecting the 1 mg tapering plan. If I get down to 1mg, I'm to stay at the 1mg till the next appointment in 6 months. If I start having problems , I'm to go back to the previous dose where I was not having problems.
Me personally would not try tapering 5mg to 2.5mg.
I have been at 5mg for probably 6 weeks. Maybe there is some logic to tapering being less stress if you've been at a stable dose for a certain amt of time having no problems.

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@pmrsuzie
Sounds like your doctor has a sound tapering plan and I would certainly give it a try!! I hope it works for you! Good luck!