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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@lisalucier

Hi, @shaylala - welcome to Mayo Clinic Connect. Sounds like your pain is truly horrible -- skull-crushing, as you mentioned. I am glad that some of the posts in this discussion were helpful.

Hoping that @patiencepie @meme59 @so4tune8 @dawn_giacabazi @gussie @cherylsd @lauriedr @kdubois may have some input, since you've found estrogen wasn't the answer for your severe nocturnal hypnic headaches and you've had to discontinue the Amitriptyline and Topiramate (Topomax). @johnbishop may also have some thoughts for you.

@shaylala - have you gotten to ask your doctor what to try next at this point? Is so, what did he or she recommend?

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Replies to "Hi, @shaylala - welcome to Mayo Clinic Connect. Sounds like your pain is truly horrible --..."

Thanks for your comments Lisa. My neurologist is suggesting a round of Prednisone next. She would try the Occipital Nerve Block but my insurance won't cover that...although I'll be asking what it will cost if the Prednisone doesn't help. I was intrigued by leamm @leamm comments on Adenosine. I normally have no difficulty falling asleep and have never been a "morning person", finding it difficult to jump up and get going...so maybe I do have an abundancy of this sleep hormone. I wonder if others with these headaches might, as well.