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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@bernese53

No....you can self-refer. I was in a wheelchair for about two months in early 2016 with severe leg pain. I had an open MRI as well as x-rays but no one here could figure out what was going on....and I live near Philadelphia, PA! I called the main appointment number for Mayo in Rochester, MN. They asked for my x-rays, etc.. I did get an appointment; it took about two months to get it. I was diagnosed with severe degenerative disc disease and will need surgery in the near future but physical therapy and epidural steroid injections really helped.

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Replies to "No....you can self-refer. I was in a wheelchair for about two months in early 2016 with..."

That's another question I have. At my age, body parts are starting to wear out. I may have to go in for hip replacement this summer. Since this rare headache only appears while sleeping, what happens when you have general anesthetic. Does it make the side effects worse? I have never had surgery.

Hi, @gussie --you pose an interesting question about hypnic headaches and having general anesthesia. I think that would be a great question to ask your surgeon when you go see one about hip replacement.

Do you have any strategies for how to get some sleep in the midst of having hypnic headaches?

I do notice when I take one Excedrin Tension headache pill before bed I still get the headache but it does seem to be not as intense. The pill has some caffeine in it so that may be the reason. I just bought some caffeine pills and haven't started them yet, but anxious to see if they help. Will keep you posted.

Please do let us know how the caffeine pills work for the hypnic headache, @gussie.