Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
My name is Pat Evans and I am 83 years old and have had neuropathy for over 10 years. I’m on Lyrica 300 mg, gabapentin does not work for me any longer. I have been to Duke University for testing, had muscle testing, nerve testing, a MRI of my brain and every blood test you can think of, Diagnosis I have peripheral neuropathy and it is idiopathetic. I’ve never had chemo am not a diabetic, nor exposed to heavy metals. I’ve been to 4 different neurologists, 3 different foot doctors, an orthopedic doctor, all say the same, they don’t know why i have neropathy. I’ve had custom insoles made, bought every over the counter ones I can find, bought every brand of shoe I can think of and I can only wear Uggs slippers. Have gone from a size 9 1/2 to an 11 shoe because my feet want lots of room. I’m so discouraged at this point. Very difficult to walk because of the pain in my feet. Looking for any suggestions to something I may not of tried or even a Doctor I need to see, Thank you
Replies to "My name is Pat Evans and I am 83 years old and have had neuropathy for..."
I’m having the same symptoms as you.
Can’t walk because my feet hurt so bad.
I’ve tried all types of shoes and my feet start to hurt shortly after I walk in them.
I also have seen at least 7 neurologists in past 12 yrs and I’ve gotten no help from them.
I’ve been on all the routine meds for neuropathy with no help from any of them.
Now I take ibuprofen and Tramadol for my pain and it gives me some relief.
Connect
Hi Pat @patevans, Welcome to Connect. I also have idiopathic small fiber PN but I don't need medications as I only have numbness and tingling but no pain that medications can't help. I also wear shoes with wide toe boxes. I went from wearing size 13 to 14 for the same reason as you but have recently switched back to a more stretchy shoe with wide toe boxes from Orthofeet. I know how you feel but please don't be discouraged, just learn as much as you can about your condition and what treatments are available that might provide some relief. In case you haven't already seen it, here's a good place to start.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Complementary and Alternative Treatments: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
Have you tried any alternative or complementary treatments?