← Return to Need Patients' Experience with Mayo Clinic. Is it worth it?

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@gangcarotid1

I can tell you beyond any shadow of doubt, we don't regret having gone to Mayo. A week ago, we spent 2+ days there, after local drs discovered tumor on my carotid artery, and were clueless. While at Mayo, I had a molecular-level scan, blood tests, urine test, consults w endocrine neurosurgeon, otorhinolaryngologist, vascular neurosurgeon, and a geneticist. All notes & summaries were available before we even left Rochester, AND when they unanimously decided my tumor was benign, the endocrine specialist delved further because SOMETHING was causing my symptoms, and often there are concerns elsewhere w a carotid body paraganglioma. They did a scan w contrast in the morning just before we flew home and found 2 tumors on my left kidney, sizeable larger than the tumor in my neck., and scheduled another visit end of this mo w renal folks. Everyone there, from receptionists to phlebotomists, to techs, to nurses to surgeons, treated me like I was the only patient at Mayo... no rushing, compassion... the collaboration was something we've never seen anywhere. The finance/insurance dept there said both my insurances were accepted, even preferred providers, which was a plus. The plane tickets, motel, ground transportation, meals total for the trip was between $3,000-$4,000, and we are on a fixed income (retired), but, like my husband says, "haven't ever seen a hearse pulling a Brinx truck". We feel we're in a place for best possible outcome; they would've never found this at home, or even thought to look. I'd have dropped dead from kidney failure and they'd have not known the cause until an autopsy was done. Best wishes for whatever you decide!

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Replies to "I can tell you beyond any shadow of doubt, we don't regret having gone to Mayo...."

I was diagnosed with CKD about 6 years ago, for the first two years I saw a nephrologist that was assigned to me at the hospital. I am fortunate to live in Phoenix, so I transferred my care to Mayo. Even though it's a 30 mile drive for me, I also have all my labs done there. With the labs the results are available on the patient portal by the time I get home. For my first visit there
I was attached to a BP machine that took my BP six times and showed the average, which is what happens for each visit. I have never had that happen before, even for complete physicals.
Everyone that goes to Mayo is there for something serious, but everyone that you have contact with there, at least in my case makes me completely comfortable.....as comfortable as possible.

I have Medicare with a supplement that has no co-pay, and no deductible. So Mayo is financially viable for me. But be aware that Mayo does not take Medicare Advantage.

The original question was, is going to Mayo worth it.................................Absolutely