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DiscussionI am afraid of trying Tymlos and other drugs due to side effects
Osteoporosis & Bone Health | Last Active: Sep 27 2:28pm | Replies (151)Comment receiving replies
Replies to "My endocrinologists, the first one who retired after I had been going to him for a..."
@sudsie58 my bone marker testing showed that Tymlos had stopped working at 18 months. Some of us are wondering if we can do more anabolic treatment after "locking in" gains so far with a bisphosphonate. Some posters have said that taking a break from Forteo or Tymlos will result in the medication working again. I plan on asking my endocrinologist about this next time.
These meds do improve bone quality and it is always possible that that effect continues past 18 months.
If your bone density has never been worse than -2.8 you have been in better shape than some of us! Did you get insurance approval for Forteo because of your surgery needs?
Good morning @sudsie58 thank you very much for sharing your experiences. You are among the very few who had used FORTEO more than 2 years continuously. Did you have your Dexa scan annually (or biannually) during treatment with FORTEO?
If you don’t mind, could you share your bmd % increase during and at the finish of FORTEO? This information will help quite a few members here on the forum as some are contemplating the use of FORTEO beyond the regular 2 years. Thanks a lot!