Post Mastectomy Pain Syndrome: How are you coping?

Posted by madijen @madijen, Sep 26, 2017

Has anyone been diagnosed with post mastectomy pain syndrome and how are they coping with it? I had bilateral mastectomies almost 4 years ago and radiation on right side. Have had daily pain on both sides the right side being the worst. Finally have been put on Neurontin which helps.

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@cindylb

Thanks for your post. In the stress of the moment - diagnosing and treating the cancer I think the long lasting physical effects of the surgery are sometimes overlooked. For the first year I had the same sensations to my chest I would have had if my breasts were still there. I continue to have some tightness in my chest area but because I developed lymphedema (which the surgeons said I couldn't have because I only had the sentinel node removed on both sides) I got both massage and physical therapy. Turns out I did have lymphedema which was confirmed by my oncologist during a regular check up and a second surgery helped immensely. The physical therapy and massage therapy were not recommended or supported by my doctors. It was something I took on for myself and I recommend everyone look into follow up care in these areas.

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What kind of second surgery did you have to treat the lymphedema?

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