← Return to Has anyone had an enlarged bile duct as large as 1.1?
DiscussionHas anyone had an enlarged bile duct as large as 1.1?
Digestive Health | Last Active: Aug 17 6:04pm | Replies (18)Comment receiving replies
Replies to "in reply to @lauramazhari Oh no! I am so sorry about your experience. I have not..."
I definitely will make another appt with my oncologist/hematologist. He is concerned that there is cancer somewhere. My GI doctors have not done any biopsies. What do you have biopsied? Is it your pancreas and liver or the bile duct itself?
Here is a little more background. My first symptoms before I even had an ERCP was recurrent pancreatitis and elevated alkaline phosphatase in my liver enzymes. I also started having fatigue, fevers, and abdominal pain. A CT revealed a very dilated bile duct so he went in to do an EUS which turned into an ERCP because my bile duct was completely blocked by stones. I haven't had a gallbladder for 20 years, but for some reason my body continues to make stones that blocks my bile duct. If I didn't have ERCP's to remove the stones they said it would eventually lead to death because everything would back up into my liver.
I will keep trying to advocate for myself. I want auto-immune testing so that it gives me more treatment options!
Thank you for all your advice!