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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 13 hours ago | Replies (581)Comment receiving replies
@dwolden
My husband's first day of conditioning chemo was yesterday (8/16) as well. Things seem to be back on track with the team. We are just taking things one day at a time now. I feel fortunate that we are close enough to home that I can run back and forth as necessary. It is probably a good thing that they won't let him come home immediately after the transplant. I think the temptation of doing things around the yard would be too much for him to resist.
Replies to "@dwolden My husband's first day of conditioning chemo was yesterday (8/16) as well. Things seem to..."
He is on day -4 and doing well. The only issues so far have been plumbing issues which caused us to have to change rooms and leave our room with the great view of the lake. The toilet was backed up the first day. Maintenance came and declared it resolved. Ditto for the morning of day two. Evening of day two water started gushing everywhere when flushed. Maintenace called for the third time. Then on Sunday, the nurse got sprayed after she dumped a urinal in the toilet and flushed it. She was coming out of the bathroom. It soaked her from head to toe. I was standing in front of her at the foot of the bed and I got splashed as well. She headed for the showers, and we moved to a new room. I hope they get it fixed for the next person. At least it made the time interesting. I know the hematology oncology unit will be glad when construction is complete, and they can move to their new floor.
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Trust me, he’s not going to feel like working in the yard for a couple months! Fatigue will most likely be his buddy for the near future. That’s not a bad thing…it’s nature’s way of telling him to slow down and recover slowly. A bone marrow transplant journey is a marathon, not a sprint. ☺️ However, I also know that it’s frustrating as heck if he’s a very active person and now has to be sidelined for a while. I learned the hard way that we SCT patients have really great days where we over do, and then pay for that thrill the next 3 days. So, again, slow and steady wins this race.
Also, he’ll be very susceptible to infections so exposure to molds and fungus in soil will be important for him to avoid for a while…no gardening, no pulling weeds or raking until he’s off the immunosuppressants and his doctor clears him for that type of work. I’m 5 years post transplant and still wear a mask when I’m working in the soil or raking leaves. It’s that important…lung infections can happen easily!
When I was able to return home after my 100 days, my doctor even advised wearing a mask in the car (this was pre-covid) in case there were any mold or fungal spores in the A/C vents.
It’s pretty cool that your husband and @avaleir are in the clinic at the same time for transplants. Wonder if you’ll ‘bump’ into each other at some point! Give your husband an air-hug or maybe a high five from me. 🤗