Anyone taken Evenity (romosozumab) for Osteoporosis?
Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.
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@lafee I don't know how bad your kidneys are but Tymlos did not pose any risk to mine. There is a slight increase in risk for kidney stones due to a rise in calcium levels, which many of us don't experience, but not effect on kidney function. The adjustable dosing was a godsend and my body adjusted as I ramped up.
Due to my kidneys, my endocrinologist did a 20% 1 mg dose, with one hour IV hydration and infusion of the Reclast over a whole hour. I hydrated the day before, day of and day after and took Tylenol. Reclast is usually once a year. With the low dose, I am doing it again after 3 months, at the same 20% dose, then three months after that, I will try 2 or 3mg.
If your eGFR is really low, like under 35, I have read that Reclast is then not recommended.
We are between a rock and hard place but if your doctor is flexible, you may find a good path!
I been trying to walk at least 20-30 minutes every day. My pain doctor ordered CASH brace. It was very uncomfortable at the beginning. But we made some adjustments and I been using it when I walk outside or in the house. This brace supposed to stabilize fractures, promote healing and reduce the pain. I don’t feel it’s reducing the pain, at least not yet, but I feel more stable when I walk. My doctor wants me to wear it for no more than 6-8 weeks.
I just want to try and see if Calcitonin reduces my fractures pain. I know that probably doesn’t do much for bone building.
Oh, okay. I hadn’t heard of it being used for pain relief. Probably worth trying to see if it does help.
Calcitonin has some bone preserving effect but is probably prescribed for you because it helps with bone pain. Both medications reduce calcium levels. You might want your calcium levels monitored. Sunny, so sorry about the fractures.
I have, and it is generally for short term use after a fracture to help with pain and speed healing. I was on a 30 day dose nasal spray and started Evenity two months later, so not sure if there is an interaction—but you think the doctor would know. Both require increased calcium intake.
I just wanted to ask you if Calcitonin helped with pain and fracture healing ? I don’t take a lot of calcium in pills but trying to get more with food. Probably I should ask my endocrinologist how much calcium I supposed to use now because I will be on Evenity and Calcitonin.
It did help some with the pain and sped up healing, which is why it is prescribed in early stages of fracture healing. I would def consult with your doc about calcium and Vitamin D3 supplements. Both Evenity and calcitonin draw calcium from the body to work.
Thank you on calcium and vitamin D advice. I started Calcitonin 3 days ago and pattern of my pain suddenly changed. It’s all over my back. Before it was mostly lower back. Question: does pain supposed to intensify before getting better or this means that drug is not going to work for me. I appreciate any answer based on your knowledge of using Calcitonin.
No, my pain did not increase and it stayed in area of the back near the fractures. It gradually decreased, although I still have pain ten months after the fractures of T1 and T11. PT is helping to moderate it. That is only my own limited experience, however. I would consult my doctor if the pain is intensifying and/or spreading.