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Anyone taken Evenity (romosozumab) for Osteoporosis?

Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)
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@lafee

Thanks for your response! Because of my CKD, Evenity and Prolia were the only shots that were recommended as they would not affect the kidneys. I figured I'd have the same results with Prolia as I had with Evenity because I'm so sensitive to drugs so I'm not going to try it. I'll check about the Tymlos but frankly it's probably not going to work for me. Yes, I'll get another DEXA and my docs are working together now.

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Replies to "Thanks for your response! Because of my CKD, Evenity and Prolia were the only shots that..."
windyshores | @windyshores | Aug 16 1:55pm

@lafee I don't know how bad your kidneys are but Tymlos did not pose any risk to mine. There is a slight increase in risk for kidney stones due to a rise in calcium levels, which many of us don't experience, but not effect on kidney function. The adjustable dosing was a godsend and my body adjusted as I ramped up.

Due to my kidneys, my endocrinologist did a 20% 1 mg dose, with one hour IV hydration and infusion of the Reclast over a whole hour. I hydrated the day before, day of and day after and took Tylenol. Reclast is usually once a year. With the low dose, I am doing it again after 3 months, at the same 20% dose, then three months after that, I will try 2 or 3mg.

If your eGFR is really low, like under 35, I have read that Reclast is then not recommended.

We are between a rock and hard place but if your doctor is flexible, you may find a good path!

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