Hi @ccwill
I have a similar initial series of diagnoses & treatment:
- Diagnosed with endometrial cancer (December 2021)
- Total hysterectomy (January 2022)
- 6 cycles of chemo (Pacitaxel, Carboplatin) from October 2022 to February 2023
- This was followed by 5 weeks of external radiation in May/June 2023 as a vaginal tumor persisted.

In November 2023, it was determined the tumor was still present. Immunotherapy with Keytruda was offered as a treatment. It was explained that at the time I began chemotherapy, the endometrial cancer study had not yet been published, or I would have also received Keytruda at the same time as chemo.

From January 2024 - May 2024, I had 5 Keytruda treatments. After the first 3 treatments, I experienced horrible side effects with my eye sight - blurred vision, sensitivity to sunlight, etc.: https://connect.mayoclinic.org/discussion/keytruda-causing-eye-side-effects/?pg=1#comment-1040122. Due to that, I skipped the next two treatments.

I had two more treatments in May, after which I had an equally horrible inflammation side effect that included neuropathy in my right hand and difficulty walking, for which they prescribed steroids. And they halted the immunotherapy. After a scan & physical exam, it was determined I was cancer-free.

As for a maintenance plan, I have another physical exam scheduled in 3 months. My oncologist stated that if the cancer returns, they may again offer immunotherapy with Keytruda as the treatment. But other than that, a maintenance plan with Keytruda was not offered or discussed. Perhaps due to my side effects or possibly just different approaches? My limited understanding of immunotherapy is that it is training your own cells to fight back against the cancer and that once their memory returns as to how to do that, they usually keep on fighting. That's my hope along with my intention: "I'm in perfect health!"