So disheartened

Posted by aaron_az @aaroncush, Apr 18, 2024

It’s been a while since I past posted as things had improved with LDN and also becoming a patient of Dr. Brent Goodman at Mayo Phoenix. Of course it was too good to last. Dr. Goodman decided to leave Mayo and move states, Mayo Neurology declined to keep me as a patient, and now I am worsening or the LDN is becoming less effective. My pain is back in force and so far I have struck out finding a new doctor.

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Profile picture for aaron_az @aaroncush

If I had a doctor that was an LDN advocate I would probably try. I had to convince my PCP to give me LDN and don't have the energy for another round of pushing. If you do give it a try and it helps, please let me know.

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Go to pharmacy & ask them to recommend a doctor. You could also join the LDN Facebook group & they may have some suggestions. Don’t give up - LDN works for pain

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Profile picture for solobeee1 @solobeee1

Go to pharmacy & ask them to recommend a doctor. You could also join the LDN Facebook group & they may have some suggestions. Don’t give up - LDN works for pain

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I am still taking LDN @4.5mg… still better than nothing (I tried to disastrous results ). Just like I don’t believe in paying a $2,200 membership fee to see my previous neurologist at his new practice, I also don’t believe in shopping around for a doctor to get an LDN prescription or any other prescription for what it is worth. My PCP said I would have to find another doctor to get a medical marijuana prescription as Mayo won’t do them and that effectively ended the ask.

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Have you tried Rochester mn. They will take me but Phoenix’s not accepting neurology patients.

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Profile picture for artemis1886 @artemis1886

Have you tried Rochester mn. They will take me but Phoenix’s not accepting neurology patients.

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No I haven't. I was trying to keep it relatively local as travel is difficult at best - right side affected by cerebral palsy, left side (formerly known as my good side) affected by this SFN, and deathly allergic to black pepper (and other things) so have to cook all of my food - haven't eaten in a restaurant in 9 years.

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Hi Aaron, you mentioned Dr. Goodman was no longer in AZ but when I search it seems he may have relocated to an Honor Health location here. Are you sure he left the state? I'm looking for someone who can diagnose my autonomic problems and came across a youtube video he did talking about dysautonomia.

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Profile picture for kobe4life @kobe4life

Hi Aaron, you mentioned Dr. Goodman was no longer in AZ but when I search it seems he may have relocated to an Honor Health location here. Are you sure he left the state? I'm looking for someone who can diagnose my autonomic problems and came across a youtube video he did talking about dysautonomia.

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He indeed moved back and is at Honor Health and I am scheduled to see him again in November even though he doesn’t really take any insurance. It was only because I was his former patient that I could even get an appointment.

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