steveron, I am eagerly awaiting updates from you after your visit with Dr. Lee. My case is similar and after reading your post and the patient's story from baptisthealth, I contacted Dr. Chuong. He was quick to respond and I am now waiting for new scan I have scheduled next week before following up with him.

I do hope your wife is getting some hopeful news; I belong to a couple of local PC support groups here that have been very helpful in giving me hope that this hideous disease is become much more manageable if not curable!
-Becky in Phoenix