← Return to Immediate and severe Tymlos side effects.

Discussion

Immediate and severe Tymlos side effects.

Osteoporosis & Bone Health | Last Active: Aug 19 3:52am | Replies (16)

Comment receiving replies
@windyshores

@daun44 Reclast will increase bone density by reducing bone turnover, not by building new bone. So if taken for more than 3-5 years (they found out after it went on the market!) bone quality becomes a problem even if bone density is improving. That is why some- not many but some- have atypical femur fractures or jaw necrosis if on bisphosphonates too long.

@beanieone those are indeed amazing gains and it is reassuring that you got them with past use of Reclast. I have been told and read that both arthritis and fractures can make bones look denser on the DEXA. My gains on Tymlos were 19% on spine and 9% on hip. They omitted L1 and L5 that had fractured but included L2 so I recalculated and my score might be -2.6, not -2.5, due to that fracture (up from -3.7).

I have kept a chart of DEXA's since 2001 and have learned to go by trends over multiple scans so I take the message overall - for you and me- of pretty impressive gains regardless of obstacles to accuracy that might be valid.

Jump to this post


Replies to "@daun44 Reclast will increase bone density by reducing bone turnover, not by building new bone. So..."

Thanks for the additional information, @windyshores.
It was my understanding that the chance of atypical femur fracture was pretty low, still there, but low. I probably heard correctly when my doc spoke of the (appearance of) increase in bone density due to fracture, however, no doc has ever mentioned it before, but then again, my docs don’t take the time to review my numbers with me. Incidentally, I don’t have much in the way of arthritis. I need to further peruse my printouts to see if I can discern better information about my scans.

But, yes, we have had significant gains and I will always take the “W”. I am happy to hear things have improved for you!!! It’s a journey!

Cheers!