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My Miraculous Recovery from Neuropathy
I am a Triple Negative Cancer survivor. I had my first breast removal 7 years ago, and my next was 3 years ago. I suffered Neuropathy which started after treatment of my 1st surgery, and after the 2nd surgery it really got worse.
I first took Gabapentin, then Lyrica along with Propanolol. These meds still did not eliminate the pain, dizziness, and unbalance. I was scheduled to go to a Neurosurgeon to see if there was anything else that could be done. He examined me and scheduled an MRI with contrast.
On February 12, 2024 I went in to get MRI. I advised that I may be allergic to dye because when I was getting tests for my last surgery I was getting an MRI on my breast and all of a sudden I could not breathe and had to be pulled out. At that time they could not attribute it to anything but the uncomfortable position they have you in to get the test done. Anyway, almost immediately upon getting the contrast in I was having trouble breathing so I had them get me out of machine. I actually died and had to be resuscitated. I then spent 3 days in the hospital. I read the report from the hospital and saw that I was also diagnosed with Fatal Kidney disease. I made an appointment with my regular Doctor. He immediately ran blood work, and said there was no longer any Kidney damage showing up, and I told him my dizziness and Neuropathy pain had been relieved as well. To this day, 4 months after being resuscitated I have quit my medications for Neuropathy, have no pain, and no dizziness or unbalance episodes. My blood pressure has also come down from being in the 175 t0 190s to 120. I feel that my whole body has had a reset after being resuscitated.
I shared this information with my oncologist today and he stated in all his years of practice he has never heard of anyone recovering from neuropathy. I know being resusicated is not a treatment that anyone would ask for, but I am wondering if there could be some kind of brain stimulation that could be done to help others recover from this crippling problem. This is why I decided to share my experience with this Chat room.
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I took Clonazepam for several years before getting off it. Later, I developed peripheral neuropathy. Is there a link?
Hi DawnG @imagine1, I don't have any experience with Clonazepam causing neuropathy but others have shared that it has helped neuropathy symptoms - https://connect.mayoclinic.org/search/?search=Clonazepam+%2Bneuropathy.
Here's a list of drugs that can cause neuropathy but I didn't see Clonazepam listed.
-- Neuropathy secondary to drugs: https://medlineplus.gov/ency/article/000700.htm
Are you currently taking medication to help your neuropathy symptoms?
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1 ReactionOncologist claiming he/she had never seen anyone recover from neuropathy is a distressing statement.In many instances peripheral nerves DO heal but it takes time (MONTHS). JHarriesMD
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1 ReactionIs it still gone?
Yes it is. I still get a little of the numbness in my feet when I walk too long or it is ciod ouy, But none of the pain and Tylenol makes it go away. I still take the Pre -Natal Vitamins and vitamin B supplement but no Lyrica or Gabapentin.
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1 ReactionI had it severly for over 3 years! I think he meant that he had never heard of someone having it in the morning, being resuscitated, then no signs of the pain the next day.
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1 ReactionAfter discussing my numbness with my neurologist, who suspects B12 deficiency as culprit, I thought it was permanent, but in the follow up appointment, he said recovery was possible with time and restoring my body with treatment. I’m doing much better. My right hand improved at my last neurologist visit! I anticipate at least 12 months of treatment to gauge the situation. The paresthesia has reduced in my feet. I never had pain. I don’t think most people understand how distressing this condition can be. My heart goes out to those who suffer with significant pain.
How do we manage our expectations? I feel hope is vital for me.
Hello. I recently met up with an old friend. He told me that he has the worse type of neuropathy. Apparently there are different types or levels? Presently I have mild neuropathy and I was told it can’t be corrected, but, it can be delayed from progressing.
I had total spinal reconstruction for scoliosis and for 17 years I was pain free. six years ago I began to have pain in my feet and had an EMG and was told I have chronic inflammation in L4 and L5. My pain has become worse each year since then. My sleep is very disturbed. I'm up four or five times a night to urinate and to try and relax the pain in my feet. I've had physical therapy. I've had Qutenza treatment and I tried unsuccessfully for a neuromodulator to be implanted. My worst symptom is my poor balance. Walking has become a challenge. I take lyrica twice a day. I t does help a little bit but not enough. I'm wondering if someone may be having a similar problem after surgery and if they've found any relief?
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2 ReactionsI take both Nuphoria and the protocol 525. I use on occasion valium and tramadol for flare ups and by and large the PN is not too bad. Balance is an everyday work in progress.
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