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Anyone taken Evenity (romosozumab) for Osteoporosis?

Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)
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@sunny65

Thank you for replying @windyshores . I fall in my kitchen October 2022 and got 2 fractures in my vertebrae . Those healed fast. Now after nuclear bone scan I found out new ones probably from therapy . I been having not stopping back pain since end of March. I found out that I have a severe osteoporosis and started Evenity. I am going to have CT scan August 22 just to find out how many fractures I have. Pain doctor prescribed Tramadol and this not helping anymore. After that he advised to try Calcitonin. I can’t take strong pain killers because I am very sensitive to any medication. I am just praying that I can handle Evenity - my third shot coming at the end of the August. Not sure if I am going to take Calcitonin. My endocrinologist told me I can try but if it’s not helping with pain - stop immediately. Still not sure if I want this risk. Pain is taking over all my life . I am looking into Vertebroplasty.

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Replies to "Thank you for replying @windyshores . I fall in my kitchen October 2022 and got 2..."
windyshores | @windyshores | Aug 16 10:11am

@sunny65 so sorry you are in pain and I can relate. I still spend time in bed where I am most comfortable. Luckily I live alone! But things will get better for you!

If it were me I would try the calcitonin. It can't hurt. As I said, I tried it but could not take it due to salmon allergy.

My orthopedist offered kyphoplasty but told me the outcome would be the same with or without. Not sure that is true! I was scared of side effects and declined but there are threads on here with posts from people who benefited.

I cannot take many meds either. Most of my pain is not bone pain, but muscle spasms caused by the shortened spine. Klonopin is the only thing I can tolerate. I take 1/4 every once in awhile to relax muscles. The pain from fractures got better in a couple of months, but the muscle spasms, I believe, will continue.

My PT did not have me do any exercises but did ultrasound and massage which helped. I think PT's are afraid of me! Walking actually helps and tai chi is very very helpful.

For some people Evenity can cause pain. My docs told me Evenity grows bone as an anabolic for the first months and then becomes an anti-resorptive. There is a study using Reclast after 6 months of Evenity rather than after 12. I hope you can discuss how long to do Evenity with your endocrinologist.

I hope you get some relief.

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