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Does anyone have a solution to help manage Reclast side effects?
Osteoporosis & Bone Health | Last Active: 6 days ago | Replies (754)Comment receiving replies
Wow! Thanks everybody for your comments. I had the same response from my doctor, "It's not the Reclast. Go see your primary care doc." My primary care doc just gives me a blank stare. How can you get help when no doctor will at least entertain the thought that it might be the Reclast!! I'm going to another endocrinologist on Monday. I'll see how that goes. In the meantime I'm going to try walking, a heating pad and chlorophyll. And, yes, where do you find chlorophyll? Does it require a prescription?
Replies to "Wow! Thanks everybody for your comments. I had the same response from my doctor, "It's not..."
Wow!….i also has bad reaction for reclast!…i told my doctor I will not take it again….the reason…..non of them report it. I think we all need to call CDC and report it. I decided to continue of eating healthy, exercising especially weight bearing. I follow BONE COACH. He’s a person that the age of 29 was diagnosed with sever osteoporosis. Good luck
I have been tired since my first infusion. However, it’s hard to take something out of my body that’s supposed to work for one year. My endocrinologist talked me into it too. What’s your primary care doc going to do? Stare at you and wonder why you are seeing her instead of the endo.
I called the FDA in Atlanta on the correct line for help. I got a recording. There is no help and if you find any please let me know. No doctor will say it was Reclast. They make money for our taking the infusion.
I eat really well, and cut out specific foods that are bad for bones. I walk and lift weights. I take supplements and I do have chlorophyll that is mixed with water and I drink that. There is a lot of information out there about osteoporosis. There are online groups and special exercise coaches just for people with low bone mass. Check them out. You will find more information online than from any doctor.
@dingus My dermatologist rescued me twice. First, 2 doctors couldn't tell me why my joints around my hips and shoulders hurt so bad. 3 months went by. I saw my dermatologist for something else, but commented about my painful arthritis. He asked if my muscles hurt and then said, "Polymyalgia Rheumatica". I was on prednisone for 2 years and it ate my bones up, but I couldn't function from the pain without it. After that I was diagnosed with osteoporosis. I started Reclast infusions. As long as I was on prednisone, I had no side effects. By the 3rd year I was off prednisone. When I took the Reclast for the third time, I started having side effects. The worst was a terrific itching on my legs from the calf to the ankle. So bad, I couldn't sleep. I went to my dermatologist for that. He did the research and found that 11% of
patients on Reclast report itching legs. The capillaries were inflamed and it wasn't a rash, it was petechia. My internist ordered me a 6 day (I think) prescription of prednisone and it cleared up. My dermatologist suggested the side effects would increase with on-going infusions. My rheumatologist agreed. So, on to Prolia. Not taking that anymore either. Sticking with Pilates, calcium, walking with weights, etc. Good Luck to us all.
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@dingus Please let us know what your new endocrinologist says. I would expect a similar response because they (most docs) are so indoctrinated by "the system" but would like to know!